Just wobbly life

Crashing down with a bump!


After 3 amazing weeks of having a house full of laughter with in-laws,  things came crashing down when reality of chronic illness and limitations raised there ugly heads again. The rollercoaster of emotions in the family unit is the hardest thing to deal with.
Having visitors is spoon consuming and takes its toll physically but the fun moments and experiences make it completely worthwhile. They were understanding of the need for siesta, rest days and being slow.  The help they gave and emotional support for my husband was invaluable so a raw void has been left with them returning to their lives. You don’t realise how deeply you miss them and how much nicer life is with family close until you see them every day.

Loneliness is a difficult  issue to deal with and is rife in the Spoonie community and their carers. Solutions are hard to find when health obstacles, shyness and financial considerations stand in the way. It isn’t as easy as find a hobby or go places. Medication timing, fluctuating symptoms, accessibility and money restraints along with lack of self esteem make it a seemingly impossible  mountain to climb. We need to try somehow.  But for now we need to remember the good times of beach trips, sloe picking and dying hair purple as well as prepare for their visit at Christmas. The countdown starts here …

A calming day at the sea!
Sloe picking in time for Christmas!