DRD tests, dystonia

More than half way down – eek!

I have managed to get more than half way down on my magic yellow ones (aka Sinemet) and it has been a lot less traumatic than  I expected. Compared to how my body is when it misses one or two normal doses by accident or is dealing with illness, it is coping quite well. Though just because it is coping, it doesn’t mean it isn’t protesting.

  • I am slower
  • My right foot turns in and walking is painful as I end up walking on the side of my foot or tiptoe. I forgot all about tiptoing until I had reduced by 1 pill. I remember tiptoing at work pre-diagnosis but never thought it was a dopamine related thing.
  • My toes curl under under more
  • My left arms favourite position is bent while my hand’s preferred position is curled. It isn’t fixed most of the time but it has had  moments of clawing with an added twist. One finger sticks up but luckily it isn’t the middle one. That would be extremely embarrassing in public.
  • I freeze more and my right leg refuses to listen when I say move. It is a bit like trying to get my Jack Russell to do something when he has his own agenda. However much you yell at it, it doesn’t happen until physically moved or it decides it wants to. Mind over matter doesn’t work!
  • My neck is tense and is pulling. All muscles in my shoulder blade are protesting.
  • Abs feel at times they are doing sit ups on their own.
  • Nausea is back in full force.
  • Forget about writing unless you have an electron microscope.
  • Talking is hit and miss, whether the required word can be said. If my tongue and lips see it as an impossible tongue twister, it becomes a game of charades or guess the word from a description. Simple questions the hardest as the tend to require specific words, where as a ramble can be made of manageable language.

Reducing my yellows has highlighted that I am better in the mornings and sleep gives me a boost.  Siestas are a daily requirement.

Cutting down again tomorrow but that is for another day.

I still have got plenty of snuggly, loud socks and I can still drink tea while cuddling my dogs so I am still smiling.

 

P.S This is late being published – sorry!

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Autumn, dystonia

Seasons change and so does the clocks

leaves pile free

Autumn is my favourite season with its stunning colour changes, crunchy leaves and crisp mornings. It inspires me to whizz through the village and countryside on my scooter allowing my dog to run through any piles of leaves. If I can’t kick them in the air, he can instead. The clocks go back so the nights arrive early. The evenings involve low lights, keeping warm by curling up in snuggly socks, reading whilst drinking cups of tea. The family comes together more as everyone gravitates to the warmth of the fire. Dogs included.

leaves free
What I always forget, until it happens, is dystonia hates the coming months. As soon as the temperature drops even slightly, the pain increases as muscles refuse to relax. My back seizes up and my hands ache continually. The slightest sniffle decreases my yellow one’s ability to control symptoms.  I generally become slower and every movement becomes harder. I am sure I have tortoise genes which not only make me slow but trigger the desire to hibernate until the Spring. I become bundled up with thermal clothes and layers upon layers jumpers. It is definitely not a fashion statement. Wheat heaties, hot water bottles and handwarmers become essential items. I have been known to have a hot water bottle on my knee as I go the shops on Bazil.
The clock change means we lose an hour. It is simple action and people happily talk about the extra hour in bed but dystonia has to protest. I have to be late taking my yellow ones so spasms creep in especially in my hands. An hour can make a big difference and once my body gets too low it struggles to catch up even dosed up. It has a knock on effect for days. My regular routine of clock watching at 4.30am, unable to go back to sleep becomes 3.30am so days seem longer and tiring. Less sleep means more symptoms and it becomes a vicious circle.

wpid-wp-1445842417361.jpeg

I am so glad Halloween, Bonfire night, Advent and Christmas are dotted throughout this time to make things brighter.

dystonia, Just wobbly life

Seasons change and so do the clocks

leaves pile free

Autumn is my favourite season with its stunning colour changes, crunchy leaves and crisp mornings. It inspires me to whizz through the village and countryside on my scooter allowing my dog to run through any piles of leaves. If I can’t kick them in the air, he can instead. The clocks go back so the nights arrive early. The evenings involve low lights, keeping warm by curling up in snuggly socks, reading whilst drinking cups of tea. The family comes together more as everyone gravitates to the warmth of the fire. Dogs included.

leaves free
What I always forget, until it happens, is dystonia hates the coming months. As soon as the temperature drops even slightly, the pain increases as muscles refuse to relax. My back seizes up and my hands ache continually. The slightest sniffle decreases my yellow one’s ability to control symptoms.  I generally become slower and every movement becomes harder. I am sure I have tortoise genes which not only make me slow but trigger the desire to hibernate until the Spring. I become bundled up with thermal clothes and layers upon layers jumpers. It is definitely not a fashion statement. Wheat heaties, hot water bottles and handwarmers become essential items. I have been known to have a hot water bottle on my knee as I go the shops on Bazil.
The clock change means we lose an hour. It is simple action and people happily talk about the extra hour in bed but dystonia has to protest. I have to be late taking my yellow ones so spasms creep in especially in my hands. An hour can make a big difference and once my body gets too low it struggles to catch up even dosed up. It has a knock on effect for days. My regular routine of clock watching at 4.30am, unable to go back to sleep becomes 3.30am so days seem longer and tiring. Less sleep means more symptoms and it becomes a vicious circle.

wpid-wp-1445842417361.jpeg

I am so glad Halloween, Bonfire night, Advent and Christmas are dotted throughout this time to make things brighter.

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